건강장애 학생이 겪는 어려움과 지원 방안에 대한 질적 연구 = Qualitative Inquiry about Difficulties and Support Needs of Students with Health Impairments

국문 초록 (Abstract)

기존의 특수교육대상학생들 외에도 만성질환으로 인한 건강장애를 가진 학생들이 최근 특수교육진흥법의 특수교육대상자로 추가되었다. 이러한 학생들과 그 가족들이 겪는 교육적 어려움과 바람직한 지원방안에 관한 국내 연구는 아직까지 많이 이루어지지 않은 상태이다. 이에 본 연구는 소아암, 당뇨, 신장장애, 천식 등을 가진 학생들의 부모님을 중심으로, 의료진, 교사, 학생 본인들에게 만성질환으로 인한 어려움들과 원하는 지원방안에 대하여 면담하고 이를 질적 연구방법으로 분석하여 그 결과를 제시하였다. 연구 결과 건강장애학생들은 질병치료과정에서 겪는 어려움 외에도 학교생활과 관련하여 교사, 또래관계, 학업 지체 등 여러 가지 어려움을 겪고 있었다. 이러한 문제점을 해소하기 위하여 교사와 또래에 대한 교육, 교사와 병원 및 부모간의 적극적인 의사소통과 협력, 학교교육체계 내에서 이러한 학생들을 위한 별도의 교육서비스 제공 및 인식 제고 등이 필요할 것으로 보이며, 무엇보다 이러한 학생들의 교육과 학교생활 관리에 대한 명확한 지침을 단위학교나 교육청별로 수립하여 시행하도록 하는 것이 바람직할 것으로 전망된다.

다국어 초록 (Multilingual Abstract)

Recently, students with health impairment are included in the legal recipient group of special education. Few studies about their unique difficulties and support needs in relation to school life, were reported in Korea. In this study, we interviewed parents, teachers, and small number of students themselves and medical staff about the difficulties and support needs of students with health impairments. Target students are students who have cancer, diabetes, asthma, or a kidney disorder. Results revealed that the students experienced many difficulties such as problems related to school absence, peer relationship, teacher attitude and psychological issues. Support needs were identified in areas such as teacher/peer orientation, school-hospital cooperation, academic support for absent days, and developing school district guidelines about the educational practice for these children.

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